Wednesday 17 January 2018

"Pretty Miraculous"

One last post--I hope--on Benedict Ambrose's late, unlamented brain tumour.

Three months after his last operation, B.A. and I sat across from a brain surgeon, who peered avidly into B.A.'s face and said, "Nothing asymmetrical."

This was the first indication we had had that my husband's face might go asymmetrical after he was released from hospital. Maybe surgeons can't really tell what has happened to your face for a few weeks after they have cut things out of your brain. Or maybe the surgeon was just taking a personal satisfaction in an operation that went even better than he thought it could.

"It's pretty miraculous," said the surgeon.

Afterwards B.A. repeated, "He said the M-word! He said the M-word!"

I wasn't as excited because the "miraculous" had been modified by "pretty", and as happy as I am that B.A. isn't going to die anytime soon, and doesn't have brain damage, and doesn't seem to have nerve damage, I felt guilty that I didn't entirely focus on the canonisation of Venerable Margaret Sinclair when praying for B.A.'s tumour to disappear. In the end, I broke down and used holy oil touched to the bones of two different saints--one bottle sent from Arizona, and the other from Rome--and, really, I asked the Blessed Mother for help quite a lot and also prayed directly to the Source of All Miracles.

Given that as soon as B.A.'s breathing tube was removed he started yelling "Her Immaculate Heart will Triumph!," and he pronounced this at widening intervals over the next three days, I'm kind of thinking this miracle, under God, belongs to the Immaculate Heart.

(Nevertheless, I'll be making one last walking pilgrimage to the shrine of Venerable Margaret Sinclair. With flowers.)

And now life goes on. B.A. will return to work on Friday. He'll be part-time for awhile. He's picked up the permission-to-work letter from the GP.

For a couple of weeks now, he's been washing the dishes, taking out the rubbish and the recycling, and even reading up on the Scottish Enlightenment period, which is one of the nicest parts of his job. We're going on a trip to the Continent next week, and although we will have to tell security people B.A. has a delicate device in his head that can be messed up by magnetic x-rays, we're not expecting any trouble.

He has a zipper-like scar at the back of his neck, which he doesn't mind, and bumps and ridges on his scalp, which he minds less now that he's had a haircut that proves he still has enough hair to cover them.

He doesn't remember very much about the seven months between the diagnosis of his brain tumour and its removal. He's definitely hazy on the various operations in between and he seems to have forgotten all the horrid periods in which his health declined again and I had to beg reluctant doctors to see him. And I'm really glad about this because I remember these times in technicolour detail, and as painful as it was to be me, it was clearly much, much worse to be him.

One of the hardest things for me to wrap my terrified mind around was that the natural order, as I had experienced it, had been turned upside-down. I grew up in a traditional family in which the Dad was rarely ill, never seriously ill, and never unemployed, in both senses of that word. He went to "the office" (which was in a university) to work, and when he came home he went "down to his office" (which was in the cellar) to work some more. When something needed doing around the house, like fixing the washing machine, he did it. All sources of material goods, my stay-at-home mother was very adamant that we children understood, flowed from my father.  Ultimate honour and obedience, under God, belonged to my father. And when finally someone in the family did fall very ill indeed, it was my mother.

You can probably see where I'm going here.

I've always expected to take care of children, and I helped with the bathing and dressing and diapering and spoon-feeding of my youngest brother and sisters and, much less often, of my nephews and niece. But nothing prepared me for carrying out amateur physiotherapy and basic hygiene for my own husband. Or for overriding his complaints that he couldn't, he didn't want to, that hygiene preserves health was a myth, etc. Or for--in the most stressful period of my entire life--taking a full-time job--a very important, specialised and hard-to-get job, too, the answer to a prayer, but also a reversal of the natural order as I know it: the Man is the principal breadwinner, and he takes care of the Woman. Man, the head; Woman, the heart. Man, source of cash. Woman, reading books while doing laundry.

There were many low points, but the one that haunts me today is that, when after a long argument, I got B.A. into a hot bath, he screamed because the porcelain tub hurt him so much.

Oh, and that last bath, in which he simply couldn't get out, so I had to get in myself and pull him out. (That, I know now, was so incredibly dangerous, I should have called an ambulance instead.)

It wasn't like a nightmare from which we couldn't wake up because it was all real, and I knew it, even if the first doctor I spoke to that day didn't know it, or insisted that the last operation had gone so well. And then, believe it or not, a friend sent me an email claiming that mutual friends had entreated her to make a "formal intervention" telling me (in short) that I was culpably negligent in my husband's care. Part of the evidence, apparently, was my blogposts. There was too much about me and my interests, about which nobody gave a ****.

Blogging, which had always been a source of comfort in times of serious stress or depression, had led to this completely unexpected kick in the head by someone I had greatly admired and considered a dear friend. I had just returned home from the hospital to which I had managed to get B.A. admitted, and I couldn't believe my eyes. On the one hand, this person isn't married, and just as happily married 22 year olds don't really understand what it is to be 36 and Single, many lifelong Singles don't really know what "happily married" actually means, or what a spouse's illness does to the other spouse, or how one particular couple habitually interacts. On the other hand--cruel, cruel, CRUEL.

I'm very happy and thankful that B.A. is better. He isn't going to die from the late, unlamented tumour. He hasn't been permanently incapacitated. He's going back to work.  He's recovering. But I have not recovered.

I have not recovered. That's just how it is. And if you don't care because clearly Benedict Ambrose, who does not have a blog, and whose few articles you have never read, is so much more interesting, likeable, and valuable to you than I am, then ask yourselves how you know him at all.




15 comments:

  1. Oh, Dorothy. What an awful thing for that friend to say -- heartless, thoughtless, and foolish.

    I am very glad to hear that BA's healing is progressing so well. Your healing is different than his, but no less important. You have come through the fire. Rest now, and God bless you.

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  2. What an envious pot-stirring busybody, cowardly too for blaming it on others. Mon oeil. You've done brilliantly Seraphic.

    I did the caretaking thing for about the same length of time as you and became quite unwell after a couple of months when it was all done. Recovery takes time for you too, ye both require convalescence really.

    I always think home nursing an unwell dependant loved one is like drowning - you fight and you fight for air but then when you come up to the surface you're still snookered. You have to get used to being in the middle of the sea and then swim to shore. That takes it's toll. You're up for air - what next. Think old school convalescing at home for ye both as much as possible. And early to bed.

    Sinéad.

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  3. So happy to hear BA is recovering so well! I have been praying for you both these many months.
    A true friend would have asked how you are doing in all of this, been supportive, encouraging, and offering assistance. Awful, nasty thing to do. My continued prayers as you work on your own recovery now.
    - a Canadian twenty something ;)

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  4. How AWFUL and false und anmaßend!You had to cope with the sheer work of caretaking, with a foreign and not very well known health system, work in a new-for-you-job full time and had the burden of deciding when to call in and insist on professional help again and again. So we - at least I - opening the blog again and again and looking for news was very glad to see you writing also about your interests and about you, who I DO care about. So very glad about the good recovery of B.A. and thinking of and praying for you!

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  5. Thanks, ladies! At first I meant just to spread the good news, but then I started venting.

    I think this may how life really is--not so tidy. Did Venerable Margaret get us our miracle--or is it a bit complicated as we most definitely asked for other prayers from other saints, not to mention from our friends and their children, little bundles of grace that they are. Am I happy B.A. is better--yes, and still blistering mad about other stuff.

    I wasn't dissing Singles, by the way. (There was a question by email.) I was just thinking about how opaque marriage can be to the unmarried--or to married people who aren't the married couple under observation!

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  6. I didn't take it as dissing singles...I took it as venting (I'm a longtime single). Also, I regularly opened your blog to see if there was news about BA, and whenever I saw a post about your own interests, I assumed it was an effort on your part to do something enjoyable so that you could cope with everything going on. Some sufferings are so great that you just don't want to discuss them, with loved ones or on a blog.

    My prayers for BA's recovery, so happily answered, will now shift to praying for your recovery. You did a great job taking care of him. Now time to tend to yourself.

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  7. First, what a relief it is to hear that B.A. is on the road to recovery. That is really great news! Please let him know that your readers are still thinking of him, praying for him, and wishing him the best.

    And for you, as well -- Seraphic, honestly, your writing (in both book and blog form) has been such a source of light and comfort for me for so many years, and it has been heartbreaking to know that you and B.A. were going through this difficult time. It's been clear from your updates how very fully you have devoted yourself to his care and well being, and the idea that anyone could imply otherwise is mind-boggling to me. I can't even begin to imagine how difficult it must have been for you to live this reality day after day, only to have comments like that thrown at you.

    Please be kind to yourself as you emerge from all of this. You may not have been the one who was sick, but a toll has been taken on you as well. Some people can't get their heads around that, but that doesn't change the very real effects that this has had on you. So as B.A. is recovering, be sure you're allowing yourself the things you need to recover too.

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  8. I can't imagine how frustrating it must have been for you through the whole process. I think taking care of caregivers is completely underestimated in our medical system (it's been here a bit in Canada for parents of sick children, but not for adults). Just like people constantly have opinions on child-rearing, it seems to have hit you in caring for an ill spouse.

    I hope you get the respite you need. And I look forward to hearing of your exploits into Urdu!

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  9. So thrilled for B.A. and I will continue to pray for your healing. I can’t imagine what you have gone through, and I read your status posts on B.A.’s illness to my husband and we would just hold each other, wondering how we would handle such a dire situation. The only thing I can compare it to is the loss of my father - I was completely unprepared for the vastness of my grief. It takes time. I will pray daily for you!

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  10. Thanks again, everybody! I didn't realise you were all still reading! :-D

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  11. So many prayers for you both Dorothy! I think you are a truly inspirational wife and B.A. is a very lucky man. This year please look after yourself and know that your many readers are thinking of you and wishing you well. I wanted to send you a greetings card during the awful period but didn't know your address :)

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  12. I am so happy that your husband is on the road to recovery Dorothy. And appalled that anyone could presume to judge how you write, cope and live through a situation they are external to and haven't the foggiest on how to deal with. Caring for a unwell family member over such a prolonged duration, the stress of wondering how it will all turn out, the day to day anxiety about his care, his doctors, and getting himself and yourself through the day; I cant believe how anyone could presume to pronounce judgement from afar at a time like this. Keep writing to maintain your sanity and because so many people rely on it for theirs.

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  13. I am also so happy to hear of BA's recovery (coming from another long-term, mostly silent reader). My husband and I prayed for both of you this past year. I cannot imagine the suffering that you both went through and like other readers said, healing will take time, so please be gentle on yourself. Your writing - and your witness - have helped so many of us!

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  14. Now I want to vent and yell on your behalf. That is insane. As if a blog is EVER the full measure of a person. Have they never heard of NEEDING A DISTRACTION? Or maybe that you know, you write about it all from your perspective when you do write about it, because it's not your place to tell it from your husband's perspective even if you could? Sigh. I just don't understand people sometimes. It's like people go out of their way to be as cruel as possible to people anymore.

    And no, I didn't take it as dissing singles - more as you trying to be the bigger person and admit that the person might not have enough perspective to understand. (It's totally a cop out for them, IMO as a single person whom you know, has friends and family and sees other people's experiences, and yet also knows that everyone's experiences are different, but I think it was mighty nice of you to even think that kindly of this person.)

    Anyway - praising God for BA's healing, and praying for your own recovery from this tough time.

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